First of all thank you for all of your prayers. They are sustaining us right now. I definitely feel them. Thank you, thank you. I just wanted to update you all on the follow up tests on the baby. This is so hard to write.
On Friday we went in for a Nuchal Translucent Ultrasound. This can look at all of the baby's structures a little more closely. Upon further investigation, what they originally thought was a cystic hygroma on the back of the baby's neck is actually an encephalocele. What this means is that the sutures at the back of the baby's skull have failed to fuse together. This forms a sort of bubble at the neck area, sometimes filled with fluid and other times filled with tissue. It looks like there is some tissue in our little baby's sac, it also looks like because of the position of the encephalocele that it is also involving the vertebrae and spinal cord. As you can imagine this is not good. This will involve respiratory function, brain function, swallowing, walking, etc. all of the major body systems.
We are devastated. If I am able to carry the baby to term it will most likely not survive soon after birth. I am still praying for a miracle because God is bigger than all of this. If it is His Will. Regardless of the outcome I know their will be blessings. There always are when we carry a cross.
The next step is to go back in four weeks for another ultrasound. Eventually they can do an MRI of the baby's brain and we could possibly get a neurologist involved. They asked us if we wanted genetic testing done. We didn't feel that was necessary as it won't change anything for us or the outcome for the baby.
I know this is all so very personal and it pains me to write all of this but I know you are all praying for all of us, and we so desperately need your prayers. Thank you.
Those who sow in tears
will reap with cries of joy.
Those who go forth weeping,
carrying sacks of seed,
will return with cries of joy,
carrying their bundled sheaves.
Blessed Margaret of Castello pray for us!
St. Gerard pray for us!